Sunday, July 31, 2016

i initially noticed facial tics around my left ear some time around ten years ago. i had an mri done but i didn't hear anything back and i forgot about it. it was kind of just a mild annoyance. at the time, i was thinking something more along the lines of heavy metal poisoning from living on a busy street with a lot of truck traffic (bronson avenue) than anything else.

the issue of the facial tics would come and go, but never really got out of hand as anything more than an annoyance until a little over a yea ago when i noticed i was having an extended period of difficulty swallowing (dysphagia) that has yet to really resolve itself. i initially brought this up with a nurse at the camh here, who did not take me seriously. i asked several times for an mri, and he kept telling me we'll talk about it later. it never happened.

the first few years i was here, i was struggling to find a doctor willing to prescribe me hormones. i was able to finally find a family doctor last fall that was willing to not just prescribe but also to increase my dosage, and that has had some positive effects. he has also finally taken my concerns about dysphagia seriously. while he suggested i should see a neurologist, i insisted on seeing an ear doctor to start and then graduating to a neurologist as the issue resolved or complicated itself.

the ear doctor initially did not take me seriously, either. however, i pushed for a hearing test - which discovered some loss in the affected ear. she still refused to take the situation seriously, suggested that the test was just error and insisted that i take it again. i instead pushed for an mri - which i had on monday.

i felt the mri would be the best idea because it could determine three things:

1) is my jaw crooked? in 2006, i fell of my bike and landed terribly on my face. the tic and resulting dysphagia could be the result of a skeletal abnormality, which could either be broken back in place or just dealt with. it would be useful to know, one way or the other.

2) do i have brain lesions? if i do, are those lesions more consistent with something like ms or more indicative of something like lyme disease?

3) is there maybe a tumor in there? i'm considering this possibility to be extremely remote due to how long i've had the issue for. one does not have a malignant tumor in their head for over ten years. i'd be dead by now.

i just checked my email and realized that somebody called me on the saturday of the long weekend to book a second mri. while i will not know the reasons for this request until i call back, i'm considering this to be somewhat ominous. it is possible that there was some error and they need to redo it, but i would think that a request for a second mri indicates that they found something that shouldn't be there. is it a lesion or a tumor?

i think they open at 6:00 am.